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by Elizabeth Linkewich ยท 2017
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Background The Toronto Stroke Networks worked closely with stroke survivors and their families to co-design a novel patient and family experience questionnaire (PFEQ) to reflect experience across the stroke system of care. The PFEQ provides a deeper understanding of emotional experiences compared to generic satisfaction surveys. In order to capture overall stroke-specific experiences across the continuum of care, this project aimed to implement and evaluate the administration of the PFEQ in a regional stroke prevention clinic (SPC).MethodImplementation was co-designed with six SPC staff. Feedback loops supported an iterative the process for administering the PFEQ to stroke patient/family members. Using thematic analysis, qualitative themes related to lessons learned and patient experiences will be abstracted from staff interviews and completed questionnaires.ResultsSPC staff co-developed the following principles for implementation: 1) administration of the PFEQ by administrative staff when possible; 2) discussion of the PFEQ with stroke patients/family members during their appointment with the SPC nurse; and 3) ensuring that the administration process is iterative and aligns with SPC processes. Within the first two weeks, 20 PFEQs have been completed with no negative feedback from patients, family members or staff. Results of thematic analysis are pending. Conclusions A collaborative and iterative implementation approach allowed for timely uptake and use of a PFEQ in a regional SPC. Further analyses from interviews will identify additional recommendations to support sustainability and spread of the PFEQ to other stroke clinics. Results from the PFEQ will be used to inform stroke system planning.